Living with Ichthyosis Welcome to Lamellar.org


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What is Ichthyosis?
Lamellar Ichthyosis (LI) is an autosomal recessive disorder that is apparent at birth and is present throughout life.

Ichthyosis and related keratinization disorders

The term "ichthyosis" originally comes from the Greek language and is derived from "fish". Therefore the disease named today as ichthyosis is sometimes termed in Germany also "fishlike scaling diseases". However, the German term "Fischschuppenerkrankung/fishlike scaling disease" is better avoided as the scales of those affected by ichthyosis do not really look like the scales of fish. Therefore it is better to use the Latin (medical) term ichthyosis. The first written medical reports about persons suffering from ichthyosis date to the 18th century in the English language. However, ichthyoses are definitely not "new" diseases they belong to human mankind and exist as long as humans exist. more...

This site contains images of skin disorders. Some of which are graphic.
Blog updates can be found here. read more

What is Camp Discovery?

Camp Discovery is for young people ages 8-16 with a chronic skin condition and offers a summer camping experience unlike any they've had before.
Learn more here


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Foundation for ichthyosis
I encourage everyone to checkout the above web site (F.I.R.S.T)  
The site contains a lot more information based on research and medical findings when it comes to Ichthyosis.


Ichthyosis National Registry
 

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